Willowbrook State School opened in 1947 by the New York State Department of Mental Hygiene. It had multiple brick buildings on 300 acres of Staten Island. In 1972 there were 6,000 residents, which meant it was 2,000 over capacity.
Human Experiments
Saul Krugman was an infectious disease expert at NYU. He used mentally deficient children at Willowbrook State School to show that hepatitis A and hepatitis B are distinct diseases. In 1974, the National Research Act was signed into law. It created the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. The results of the studies are published in The Willowbrook Letters: Criticism and Defense. (1)
Advocacy
Donna J. Stone, an advocate for mentally disabled children and member of the Association for Retarded Children, gained access to the school. Stone posed as a social worker so she could walk around undetected. When she was finished with her self-guided tour, she shared her harrowing observations with the press.
Jane Kurtin was the first reporter to write a story about Willowbrook. Kurtin attended a demonstration and met 2 social workers. Their names were Elizabeth Lee and Ira Fisher and they brought her inside the building.
Sen. Robert F. Kennedy shocked us all and showed up to the hospital unannounced in 1965. Kenndy was shocked by what he saw and said, “I’ve visited the state institutions for the mentally retarded, and I think particularly at Willowbrook, we have a situation that borders on a snake pit.”
In 1971, a mother named Victoria Schneps Yunis, whose daughter was a resident of Willowbrook’s infant rehabilitation ward, organized a picket-line to protest deplorable conditions and budget cuts.
When Dr. Michael Wilkins was fired from his position at Willowbrook State School, he wanted to blow the whistle on the school. He gave his employee key to Geraldo Rivera who accessed the building. On February 2nd, 1972, from 7:30 to 8:00 p.m., WABC-TV aired a 12-minute exposé by Rivera who managed to sneak in a camera. It was shocking for viewers to see. “It smelled of filth – It smelled of disease, and it smelled of death,” Rivera said. The documentary is called “Willowbrook: The Last Great Disgrace.” It earned a Peabody Award along with a public and political outcry.
David Rothman, Professor of Social Medicine and History at Columbia University, published The Willowbrook Wars, which he coauthored with his wife Sheila Rothman. Rothman also published the controversial book, The Discovery of the Asylum, which tells a factual story about the history and origins of the asylum and prison systems of the United States in the eighteenth century.
Lawsuits & Closure
Thankfully, the New York Civil Liberties Union and the Legal Aid Society filed class-action lawsuits in 1972 which led to the landmark 1975 Consent Decree under U.S. District Judge John Bartels. This settlement would implement some much-needed guidelines and requirements for operating the institution and the care of its residents, which would be cut to 250 beds. The federal Civil Rights of Institutionalized Persons Act of 1980 was also passed. This Act reinforces the rights of residents in state or local correctional facilities, nursing homes, mental health facilities and institutions for people with intellectual and developmental disabilities.
Despite this ruling, the parties would see each other in court several more times until Gov. Mario Cuomo ordered the school’s closure in 1984 when the population was 1,000. Just 1 year later, the population would have shrunk to 250. Willowbrook officially closed its doors on September 17, 1987, after its last 30 residents were transferred to other facilities.
Miscellaneous Facts
The school was the first of the state’s seven developmental centers to close.
The institution was built in 1942 but was taken over by the federal government and used as a hospital for returning World War II veterans.
The facility opened as a State Hospital on April 1, 1951.
In 1993, the Willowbrook Permanent Injunction was signed which represents the current standard of services for class members. The 380-acre site is now rededicated for use as a college campus and the New York State Institute for Basic Research in Developmental Disabilities.
For more publications, pamphlets, and images see A Guide to Willowbrook Resources.
I think that at the state institution for the mentally retarded, and I think that particularly at Willowbrook, we have a situation that borders on a snake pit, and that the children live in filth, that many of our fellow citizens are suffering tremendously because lack of attention, lack of imagination, lack of adequate manpower. There is very little future for these children, for those who are in these institutions. Both need a tremendous overhauling. I’m not saying that those who are the attendants there, or who run the institutions, are at fault – I think all of us are at fault and I think it’s just long overdue that something be done about it.
—Sen. Robert F. Kennedy
Citations
(1) Valdés, E. (2021). Biolaw: Origins, Doctrine and Juridical Applications on the Biosciences. Germany: Springer International Publishing. L-G-0016153483-0054423980.pdf (e-bookshelf.de).